Welcome to the Fragile X New Zealand Website

Browse this site to learn more about Fragile X Syndrome and Fragile X-associated Disorders, including diagnosis and testing, treatment, interventions and education strategies. Find out more about Fragile X New Zealand and our national community support network, including how to join our mailing list and the things we offer. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.

For more information contact executive director Andrea Lee by e-mail or phone toll-free 0508 938 0552.

Things to do ....

  • Visit our Facebook page: Fragile X New Zealand
  • Read our latest newsletter
  • Watch this informative DVD online about fragile X syndrome.
  • AndreListen to Andre who has fragile X and his sister Yasmina sing ‘I’ve Got Fragile X’, written by New Zealand singer/songwriter Kath Bee. Fun for children and adults alike and a great way to learn about fragile X and raise awareness!

We would like to acknowledge the generous support of the following organizations:

  • Lotteries Grant Board.
  • Lion Foundation logo
  • NZORD logo
  • Pub Charity logo
  • Pelorus Trust logo
  • IHC Foundation logo
  • Fuji Xerox logo
  • Spicers logo

We would also like to thank NZORD for making this site possible.