Search

Welcome to the Fragile X Trust New Zealand Website

Browse this site to learn more about Fragile X Syndrome, including diagnosis and testing, treatment and educational strategies. Find out more about the Fragile X Trust, including how to join our mailing list and what resources can be borrowed from our library. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.

For more information contact us by e-mail or phone toll-free 0508 938 0552.

Things to do ....

Dates to put in your calendar!

  • North Island Family Gathering
    When: 5–7 November 2010
    Where: Rotorua, Holdens Bay Top 10 Holiday Park
  • South Island Family Gathering
    When: 29–31 October 2010
    Where: Hamner Springs, Mountain View Top 10 Holiday Park

More details to follow as we confirm arrangements. Contact Lindsay (our new Administrator) to register your interest: admin@fragilex.co.nz or 0508 938 0552 (toll free).

Review of Special Education

In August 2009 the government announced a Review of Special Education.

The stated aim of the review was to ensure that policies and processes are fair, consistent, reach those most in need, make the best use of government funding, and that parents have choices.

The review specifically asked for feedback on the following issues; Successful schools; Changing the way schools work together; Improving interagency operations and transitions; Allocating and using funding and other resources; and improving accountability.

The Fragile X Trust put together the following submission.

We would like to acknowledge the generous support of the following organizations:

JR McKenzie Trust.  Todd Foundation.
Lotteries Grant Board. Pronto Print logo.

We would also like to thank NZORD for making this site possible.

Important News

Welcome to the Fragile X Trust’s new administrator Lindsay Cooper!

We now have an office:

NZORD Offices,
228 Tinakori Rd,
Thorndon,
Wellington 6011

Lindsay will be in the office 10am–1pm, Monday, Wednesday, Thursday

Phone: 0508 938 0552 or 04 471 2225

admin@fragilex.org.nz