Welcome to the Fragile X New Zealand Website

Browse this site to learn more about Fragile X Syndrome, including diagnosis and testing, treatment and educational strategies. Find out more about Fragile X NZ, including how to join our mailing list and what resources can be borrowed from our library. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.

For more information contact our national coordinator Andrea Lee by e-mail or phone toll-free 0508 938 0552.

Thanks to everyone who attended our recent Fragile X Workshop series in Auckland and Wellington. Click HERE to view the presentations and notes.

Things to do ....

Dates to put in your calendar!

  • Fragile X Family Gathering, 7–9th November 2014
    Kennedy Park, Napier
    All welcome!
    Please contact Andrea Lee at for more details
  • Our next Fragile X Specialist Clinical Forum with Dr Andrew Marshall will take place later this year. Please contact our national coordinator Andrea Lee by email or phone toll-free 0508 938 0552 for more information.

We would like to acknowledge the generous support of the following organizations:

JR McKenzie Trust. Lotteries Grant Board. Pronto Print logo.

We would also like to thank NZORD for making this site possible.