Search

Welcome to the Fragile X New Zealand Website

Browse this site to learn more about Fragile X Syndrome, including diagnosis and testing, treatment and educational strategies. Find out more about  X NZ, including how to join our mailing list and what resources can be borrowed from our library. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.

For more information contact our national coordinator Andrea Lee by e-mail or phone toll-free 0508 938 0552.

Things to do ....

Dates to put in your calendar!

  • Join us for our National Fragile X Family Gathering 1–3 November 2013 in Taupo. Contact Andrea to register your interest and for more information
  • Our next Fragile X Specialist Clinical Forum with Dr Andrew Marshall will take place later this year. Please contact our national coordinator Andrea Lee by email or phone toll-free 0508 938 0552 for more information.

We would like to acknowledge the generous support of the following organizations:

JR McKenzie Trust. Lotteries Grant Board. Pronto Print logo.

We would also like to thank NZORD for making this site possible.

Successful Fundraising Event

Fragile X New Zealand recently held a Charity Golf Day which raised over $15,000!!!!!

This money will be used to expand the services offered as part of our Fragile X Specialist Clinic.

Thanks to softball legend Mark Sorenson, Jayne Sorenson, Chris Hollis, and others who worked hard to make this such a success.

Liam, Danielle, Grayson and Lucas.

Liam, reporter Lucas de Jong, Grayson and Danielle getting ready for an interview with TVONE Breakfast!