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Welcome to the Fragile X Trust New Zealand Website
Browse this site to learn more about Fragile X Syndrome, including diagnosis and testing, treatment and educational strategies. Find out more about the Fragile X Trust, including how to join our mailing list and what resources can be borrowed from our library. Follow the links on our web pages to get the latest information on Fragile X and related disorders. Access our latest and past newsletters here.
For more information contact our national coordinator Andrea Lee by e-mail or phone toll-free 0508 938 0552.
Things to do ....
- Visit our Facebook page: Fragile X Trust NZ
- Read our latest newsletter
Dates to put in your calendar!
Fragile X Specialist Clinic
Our next Fragile X Specialist Clinic with Dr Andrew Marshall will take place in October. Please contact our national coordinator Andrea Lee by email or phone toll-free 0508 938 0552 for more information.
North Island Family Gathering in Taupo
November 11–13th 2011. Fun activities for the whole family. A chance to catch up with old friends and new, have some fun and share the experience of raising children affected by fragile X syndrome.
South Island Family Gathering in Hanmer Springs
Dates to be confirmed.
We would like to acknowledge the generous support of the following organizations:
We would also like to thank NZORD for making this site possible.
Successful Fundraising Event
The Fragile X Trust recently held a Charity Golf Day which raised over $15,000!!!!!
This money will be used to expand the services offered as part of our Fragile X Specialist Clinic.
Thanks to softball legend Mark Sorenson, Jayne Sorenson, Chris Hollis, and others who worked hard to make this such a success.
Liam, reporter Lucas de Jong, Grayson and Danielle getting ready for an interview with TVONE Breakfast!