Contact Us

For further information about Fragile X New Zealand, or if you would like to make a donation to assist our objectives, e-mail us at or phone toll-free on 0508 938 0552 (only within New Zealand).

If you would like to join our mailing list you can apply online or download the application form (pdf file; requires Acrobat Reader, which can be downloaded at this link).

If you would like to give colleagues, friends or family members some information on fragile X, we can send you pamphlets or you can download a copy here (pdf file). Note: this pamphlet is designed to be printed double-sided and folded in three.

Advice and Support

Please email or phone us if you require specific information would just like someone to talk to. Fragile X New Zealand's national office is in Lower Hutt and the email and toll-free phone service is answered by Andrea Lee 9–6 pm weekdays and monitored by Joanne Richards afterhours.

Phone: 0508 938 0552 (TOLL FREE) or +64 210446299 (International)
Post: P.O. Box 1322, Nelson 7040, New Zealand

Local support. We can put you in contact with local support groups or fragile X families in Whangarei, Auckland, Hamilton, Thames, Tauranga, Taupo, New Plymouth, Gisborne, Napier, Masterton, Palmerston North, Levin, Wellington, Nelson, Christchurch and Dunedin.

Expert advice. We can also put you in contact with, or seek advice on your behalf from, our expert advisors:

Dr Andrew Marshall, Developmental Paediatrician, Child Development Team at Puketiro Centre, Porirua, NZ

Dr Jonathan Cohen, Medical Director, Fragile X Alliance Inc, North Caulfield; Senior Lecturer, Monash University Dept of General Practice, Centre for Developmental Disability Health Victoria, AUSTRALIA (see

Dr Randi Hagerman, M.I.N.D. Institute, University of California at Davis Health System, Sacramento, California, USA

Dr Marcia Braden, Psychologist, Colorado Springs, Colorado, USA (see