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Join the Mailing List

The Fragile X Trust (NZ) is open to anyone but, in particular, to any individual, family or organisation who has an interest in supporting/caring for people with Fragile X Syndrome.

Our mailing list consists mainly of families of people with Fragile X, but also includes doctors, therapists, educators, other professionals and schools.

To subscribe is $10 per year for an individual/family/institution.

If you would like to join the mailing list of the Fragile X Trust please complete our application form.

Click here for the on-line mailing list form:

Mailing List Form

Or here for a print version:

Mailing List Form

Benefits of a Subscription

Newsletters

Receive newsletters which include:

  • News on developments in the understanding and treatment of Fragile X
  • Families comments/experience
  • Details of upcoming events.

Also receive monthly E-newsletters with up-to-the-minute details on the latest happenings in the Fragile X community in NZ.

Support

  • Be connected to other families to learn about their experiences with fragile X and gain knowledge in how to deal with issues on a day to day basis
  • We have a national coordinator who is happy to support families and provide information and advocacy
  • We have five regional area contacts

Information

  • The Trust has a library of books, educational information, DVDs etc which are available to members.

Clinics

  • Specialised Fragile X Clinics for children with Fragile X are arranged by the Trust and are available to those on our mailing list at no cost.

Events

The Trust organises:

  • Conferences where local and overseas experts share their knowledge and insights
  • Workshops on topics and issues relevant to family affected by fragile X
  • Family gatherings to provide members with an opportunity to meet and share their experiences with other Fragile X families